I am so sad, mad and upset at you.
After years of being scared to have kids, in fear of them inheriting genetic baggage, my deepest fear has come true. Since my youngest daughter was born, her delays have been obvious. Then the diagnosis of Autism arrived. All this time I have been riddled with the guilt that I am at fault for her delays and diagnosis. I have second guessed everything that happened from the morning sickness to having to be put out for her birth.
Then earlier this year my sister, your youngest, was found to have a rare chromosome that was linked to her cancers. Because of that, my baby and I have been tested due to that connection. Today I got the call that we tested positive with links to my health problems, and my sweet baby who has autism and a big head. All this time I blamed myself that it was my fault for her social and development delays.
All her and I did was be born. It does not ease my pain that it might not be my fault. She inherited from me, and I from you. We were born. End of story. I know that if you were here today we would find out if you had the same mutation of the gene. Statistically it had to be from you. But who did you get it from? I have a million questions for you. Life has thrown my small family too many curveballs. Why are we the ones with the genetic baggage, and not the rest of the family?
It is so not fair. Cancer is a bitch. I can never imagine life without both my babies. Autism has had its hard days. It has given us moments that remind us with what is really important.
I wish you were here.
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