Hearing the cars outside just highlights that I need to get to sleep. The moonlight peeks through the blinds in our bedroom. I need to sleep. I do not know when she will wake me up. My four-year-old has a horrible sleep track record. Most nights I take the midnight shifts to let my hubby be rested for work.
Today was one of the bad days in our world of autism. She did not sleep last night so the morning ABA session did not go well. She screamed to leave. When I took her to preschool, I did not expect it to go well. An hour later I had got the call from her aide that she was inconsolable. I went to get her early. For the rest of the afternoon and into the evening she wailed. I had no idea how to help her. She does not speak so it makes it even more heart breaking. I hate myself for saying how much Autism can suck.
At that moment I said it in my head, the tears rolled fast. I turned away from my husband to try not to wake him. I balled my fist into my mouth to muffle my sobs. It took several minutes for the tears to stop. It is like I lost someone I never knew. Only we do not have a funeral. Grieving about it gives power to the feeling that it is like another child. She is my daughter and I will do anything for her. Right now I accepted the grief so I can move forward and be the mom she needs in me.
Danielle Christopher 